Showing posts with label Lupus artist musician. Show all posts
Showing posts with label Lupus artist musician. Show all posts

Friday, March 9, 2012

THURSAY'S GRACE NOTES: PLEASE READ! This is the most important Grace Notes that I have ever written.

THURSDAY'S GRACE NOTES.  PLEASE READ!  This is the most important Grace Notes that I have ever written
After falling out of my wheel chair on Monday left with even more wounds and a damaged and wounded left eye I was given the facts of my diagnosis for the rest of my life due to my chronic wounds. I can not go to large populated events ever. My main heart breaker is church. In my powered wheel chair I can go to a large store, like Publix as long as I do not get close to many other people at the time. No body can visit me at my home if they are sick or have a family member that is sick.  I will be losing my house and, my car has been repossessed.  But this is when the weird thing comes in.  I am still "inappropriately happy" and still look forward to the next fun day.  I still have my art , music, and marketing "job" and totally "work" from home.and I still have people (yes even you)  and Jesus will never ever leave my side.  The most "horrible" things that I go through the more I can help others because I have gone through them myself.
So
I no longer celebrate the day I celebrate each minute.
So let's go out there and let's rock our world!
I love you all.
Nancy

Saturday, March 3, 2012

Nancy Asbell: Chronic Illness

Nancy Asbell: Chronic Illness
Because of the increased severity of my rheumatism I cannot hold or grasp many things.  Everything ends up on the floor usually broken.  I take time to nicely talk to myself "it's okay Nancy...  it really is okay.  And I go around the house several times a day with a reacher and calmly pick it all up, again.

Nancy Asbell: Chronic Illness

Nancy Asbell: Chronic Illness
Note to self;
If you need to do self directed rehab again do not begin in second grade level when you are really still in Kindergarten.      I'm just sayin'.

Thursday, March 1, 2012

Thursday's Grace Notes

Thursday's Grace Notes
Seeing things in a different light, be very careful with what you for... God just may be listening again, all of my guardian angels , my new courier service... affordable, professional and insured, (I'm back!), many years ago Glenn and I had the privilege of being the Jax. Lupus Facilitators. My doctors would schedule new Lupus patients before and after my appts to gently hold their hands and support them while my doctor smiled and kept giving me the "thumbs up sign" behind their back, cute,. I don't know where that Nancy is but I think that I can find her AND being so absorbed in my work yesterday that I didn't know that my watch was upside down until 5:00 in the afternoon. I love my life!
Celebrate the day!


Wednesday, February 29, 2012

Angels Unaware

Angels Unaware
After my Eight long years of having seizures and Epilepsy we had a woman's retreat at "my" church where I was the music minister.  At the very beginning we all, mostly "strangers", all of the ladies held hands for Jesus to "take away my Epilepsy".  Oh didn't they know?   I didn't have Epilepsy, it had me. It was who I was.
Two weeks later at 103 pounds I was admitted into the Hospital neurology department for two weeks in Las Angeles.and it was decided that I didn't have Epilepsy after all but complicated migraines that presented themselves as seizures but were TIA's (mini strokes) and brain inflammation.
Here is the neat part ( I am now a Lupus advocate and my symble is butterflies) once home my church family gave me a beautiful stained glass of a butterfly symbolizing "new beginnings".
Oh ye of little faith.


Tuesday, February 28, 2012

Tuesday's Grace Notes

Tuesday's Grace Notes
"I can't I can't...  oh yes you can!  Sometimes our setbacks teach us lessons more valuable than gold,  Teaching early morning voice lessons w/out an ounce of make up then brazenly heading to Publix for the first time in weeks due to illness and being told that my "face just glowed",  very sick in bed the next day to "pay" for it but sometimes when you have a chronic illness that's just part of the game....and worth every penny and wondering "can life get any better than this?
www.asbellarts.com

Thursday, February 23, 2012

Asbellarts Marketing Tip

Asbellarts Marketing Tip
Today I recieved one more marketing client, sold a painting, and another new vioce student.
Good luck you say?  Talent? No.... a lot of hard work and social marketing.
Want to play along on the cheap?
asbell@gmail.com

Thursday's Grace Notes

Thursday's Grace Notes
Enjoying food again,  waking up feeling strong and better so that so many people can stop worrying about me.. including myself, once I become stronger I can be stronger for others as well,,  the fact that all of my students and clients end up eventually being my friends,  opening my fridge and not hearing the song "Blinded by the light",happy crows and old dogs chasing squirrels,  fun is always there to be had, we just have to remember to plug into it  and  Praising God that it is February and you and I are hear to enjoy it.
Celebrate the day!
www.asbellarts.com

Wednesday, February 22, 2012

Wednesday's Grace Notes

Wednesday's Grace Notes
Waking up and finding that the sun beat me to it!  Forgiving myself for not meeting my own demands, allowing myself that second mug of coffee, only being able to eat 1/2 my food,  making my homemade soups...  realizing that all along God has been supplying all of my needs and I was the biggest roadblock  and now I am waving my white flag. Dramatically increasing my steroids, beginning a very minor antidepressent and, this is the big thing....  I began having sezuires once I turned 21 followed by a life of illness. Last night for the very first time in my entire life  changing my bandages and asked God "Lord! Why me?  What have I done to deserve this?"
Do I place myself above Christ?  Even He cried to His father in Heaven "My God my God why have you forsaken me?
Now it's my turn to praise Him and say
"My God my God! Why have you blessed me?".
It all comes down to Grace.
Celebrate the day!


Monday, February 20, 2012

Angels Unaware

Angels Unaware
Anybody out there and have 5 kids and have said "What was I thinking?" Hello.  How about being 50 yrs old with 5 rockin' kids?  Hello!  This is a posting about my big Sister Michele and my brother in love Chip. They are a true witnesses to what parenting and love has the potential to be. I was a very good mother, the best of the best and I never had a clue.  Did I mention that my beautiful sister has MS?  They have so much to teach, so much to share and so many people to encourage.
Please help them to continue to encourage others if nothing more than sharing this post?
Oh and by the way.  Michele is a powerhouse.  You rarely see her without a smile on her face and seems to always find the funny side in everything.
I want to be like her someday when I grow up.
They call themselves the "Rainbow Clannad"
While I "celebrate the day"
Her motto is "Living the dream.

Monday's Grace Notes

Monday's Grace Notes
I now declare that I only have a bad chest cold,  Today I took a real long look at myself in the mirror. I have been sick for several weeks. Once I recognized who I was and the shock began to wear off, I took two hours to slightly recaim my "girly girl".  Is it too soon to say "celebrate the day"?  Waking up to a messy house that I can still live in, hey! who turned on the birdsong again?  I have not been able to ride my blessed power chair down to Publix in several weeks.  It's not about the groceries.  I am well taken care of,  it's the baking manager that offers me not a free cookie but wants to give me a $14.00 torte just to make me happy.  I blush, stammer, give thanks and roll to the produce section.  There the produce manager takes me aside and says "our God is not on our schedule but he wants me to tell you that you are not alone. They know nothing about me... many of you are also in the dark as it should be.  They know nothing.  But they have seen me become weaker.  People who are strangers to me come up and say "you don't know me but you are such an inspiration to me...  you rock!"  I don't deserve any of this but if God wants to give it to me then I will try to pass on my Grace Notes for one more day.
Okay now can I say it?
Celebrate the day?
Celebrate!

Sunday, February 19, 2012

Sunday's Grace Notes

Sunday's Grace Notes
Sleeping 7 1/2 hours straight!  Good golly Miss Molly!  Church is not for perfect people and that is why I miss it so much...   I fit right in,  able to eat an almost full bowl of cereal,  lighting a candle just for me and taking the time to slowly smell the lingering scent before I blow it out, old dogs that carry 1/2 of the "Nature Preserve" back inside with them to share, burning my delicious dinner but there is always tomorrow, "Joel Osteen" ( Mr Smiley) and Nancy Asbell both  smiling too much...  Okay! If they shared the outlook "Choose not to be a victim but a victor" they'd be smiling too.  Come one!  It's good endorphins. I still have legs... and they hurt... and how can I not be praising God...  I still have legs... and they hurt... and, and, I get it.  Bring it on!  Praise God!  I found my marbles.  They were in my chest.  Now I just have a nice calming pur of a cat before he plans his next attack.  Yeah....  I crack myself up.  I have to do something between snacks.  Seriously though, at least I have a beautiful bed to take naps in.  Tomorrow I am going to get my voice back to sing.  Even Panda misses it.
Celebrate the day!



Saturday, February 18, 2012

Angels Unaware

Angels Unaware
Living in Barstow California we were one of the lucky ones to experience the devastating earthquake.We were gripped in fear, darkness, and the crashing sounds of a "freight train". The only safe place in our government housing w/ a stud was at the front door so we huddled there. I was cold, in shock and forget about making conversation.  Above all of this roar my then 8 year daughter yelled "
HAS ANYBODY PRAYED YET?"
Out of the mouths of babes.
Celebrate the day!

Saturday's Grace Notes

Saturday's Grace Notes
I wake up and I still hurt and God says "I know.  And you are never alone".
A lot of people don't like me. I mean, how can she "be suffering" and still be able to post these "Grace Notes?"  Oh just gag me with  spoon! (I wouldn't suggest that.  It sounds very painful from here),  I mean she just about gives her art away. She cheapens the work for of all of us.  Okay. Let's play a game.  You are told by a doctor that you have 30 days to live.  What will you do?  Something good I hope.  Okay how about 3 months to live?  The Mayo Clinic says that I almost died 11 times in the last two years.  They say that they cannot take credit.  It was my faith, incredible will to live and attitude.  Now they say that I live "on a tight wire"... every day is a miracle for me. Today?  Tomorrow?  I and my family know where I'm going. So I unclench my hands and I give free advice to international art lovers, very cheap coaching to artists/performers (if they are really serious about their business) my talents? Eh, landscape artists are a dime a dozen.  My overwhelming amount of experience/wisdom in social media/marketing? Extremely good.
At the end of the day I am telling Jesus "I hurt" he says "I know and you are not alone".
Every day I will selfishly be posting my Grace Notes. They help to keep me alive.
You can always "change the channel."
You see, I am the lucky one.
Celebrate the day!


Friday, February 17, 2012

Friday's Grace Notes

Friday's Grace Notes
The Village Idiot
No wait!  Don't change the channel!
Have you ever paused to think about the hows and whys you became the person that you've become?  Well I do and there is always someone to blame.  Yup.  That's when we begin w/ our parents and it usually is not on a high note.  That's the trend, right?  I could play along but no I would be throwing more of Gods Blessings back in His face.
So play along, please. Yes. Pun intended.
I was born premature.  The Dr gave my mother this way too small baby and says "be careful.  She can't have much stress... good grief.  I really liked that different drummer. (http://asbellarts.blogspot.com/2012/02/moses-had-aaron-i-had-michele.html
I was geeky and very talented.  Sometimes poor as church mice my Mom made sure that we always had the finest art supplies, piano lessons, two pianos so we wouldn't fight over who's turn it was to get to play, Michele and I sang and harmonized ALL THE TIME! She made sure that I had voice lessons, two of the best guitars money could buy, encouraged us to be in every play, no matter how stupid our costumes looked and cried every time that she heard me sing lyric soprano as I majored in voice with scholorships..
No Don't let me confuse you.  It's not Mothers day, but she is 86 years old and I have a life threatening disease. Why wait.  Life is WAY too important.
Celebrate the day
I love you Mommy.

Friday's Grace Notes

Friday's Grace Notes
I slept through the night. Didn't wake for pain medicines, only had some new wounds to treat for messes. I only struggled to breathe once I got up... and I was giddy. I gave myself shots, took blood pressure nmeds, I took my daily photos of my legs for my health care team..  today they are fire engine red (I am an artist you know so I can change from black to red if I want to),  it took me one hour to shower, re do some wounds and get dressed on my own and I was giddy,  my Mayo staff said That I still run a huge risk of losing my legs but due to new treatments using "balloon's" I should be able to live through the surgery.  Maybe NOW you can understand why I am so giddy!  Giddy up and go and
Celebrate the day!

Thursday, February 16, 2012

Thursdays Grace Notes

Thursdays Grace Notes
I have personally experienced so much pain and worse yet witnessed again and again the suffering of others. 2011 has been a sense of Hell itself .  Or has it been?  It has been the most beautiful experiences of my life.  I praise God for them.   I will never be the same. I never want to be the same.  Now I have so much of the good parts of myself to give,  I have pneumonia.  Can you imagine having bronchitis asthama or Copd Every day?  Now I once again have been given another eye and heart lesson of the struggles of others.   I roll into the kitchen in the morning filled with stress.  "Should I have 1/2 of a bagel with my beloved coffee and Greek yogurt or a bowl of cereal.  Some beautiful woman on the other side of the world just lost her fifth child to water so dirty it cannot be printed on this page.  How can I go without praising Jesus for MY lupus and MY available medicine.  Suddenly my blessings are raining down me and I will never be the same.
Celebrate... CELEBRATE the day!

Wednesday, February 15, 2012

I Once Was Lost But Now I'm Found

I Once Was Lost But Now I'm Found
Rotating My One Woman And look What I Found!
The Way To Cedar Key 20x20
Days End 22x28
Guanna Blue Three 20x20
Steve's Guana
Lilly Pond Marsh 10x30
Blessed 10x10
Merritt Island 20x30
Golf View 24x24
Sunlit Palm 12x24 
Emerald Waters 20x30
Morning Golf View 26x48
Large Palm 4' x 5'


Artist Tip For The Day

Artist Tip For The Day
Facebook people!
Create a separate business page for yourself and Blog.  If this stroke lady can do it so can you!
Market yourself!
60% percent of my social media sales come from Facebook.
Load it up with only your best images, make a very simple resume and remind them just WHAT makes you and your product so special.
It takes time but you and your BUSINESS are worth it.
Celebrate the day!
www.asbellarts.com

Wednesday's Grace Notes

Wednesday's Grace Notes
Finally getting the correct meds for my pneumonia (I am allergic to too many)  choosing to have fun anyway and placing lightweight easy to read catalogs in my bed to read first thing in the morning or at 3:00 in the morning when I can't sleep, making biscuits just for me... oh and a big glass of chocolate protein powder,  Megan once again taking care of me w/ meds and groceries. I hear that she actually DOES have life... meanwhile she gut me a couple of real tubs of ice cream, you know the kind that I haven't had in a very long time?  I barely remember what they taste like but I'm willing to try,  people willing to take time off of work just to take care of me.  As you can see I am hanging in there but I don't deserve their kindness,  doctors showing more compassion and kindness and giving myself the gift of only surrounded by those who love them.... however there is always that "10%"
Celebrate the day you dear people!